Mom.life
Kiana Buni
mama_of_one
Kiana Buni ·Мама сына (8 лет)

So my mom just told me that we have a rare condition that run in our family called thallessmia and it can cause weight loss and when they do testing it comes back anemic usually until they do further testing. :( now I'm freaking out my baby has a rare uncurable disorder.... Ugh can't wait for tomorrow....

25.03.2018
2

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mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies I posted an update thanks for caring so much!

27.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

@mama_of_one, good luck keep us updated

26.03.2018 Нравится Ответить
mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies no we are going in today soon to talk to them

26.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

Have they called you yet

26.03.2018 Нравится Ответить
mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies the doctor doesn't think so

😭 But let's hope

26.03.2018 Нравится Ответить
carzate
Clarissa Arzate·Мама троих детей

Hope everything works out , positive thoughts and prayers

26.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

Nice my daughter was born four weeks early then contracted meningitis and since then has only gained.5 pounds a month they are worried she has cerebral palsy but meningitis and being preterm makes her at risk for it hopefully it’s because he is more active

26.03.2018 Нравится Ответить
mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies no 41 and half weeks when born

26.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

Was he a preemie

26.03.2018 Нравится Ответить
mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies yes and sitting up. Not talking only babbling still and not standing up. He just learned to sit this month

26.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

@mama_of_one, did he start crawling

26.03.2018 Нравится Ответить
mama_of_one
Kiana Buni ·Мама сына (8 лет)

@mommysbabies thank you i hope that is the case he lost 1.5lb in a month and before that lost a couple oz.

26.03.2018 Нравится Ответить
mommysbabies
Ashley ·Мама троих детей

I just scrolled down and read your post about dr my daughter is labeled failure to thrive her labs came back fine I hope that’s your case we are however seeing a specialist next month I hope things get better for you guys and you don’t have to see another dr my dr has seen some cases where kids just don’t gain fast enough or they just lose and they catch up at age two I hope this gives you some hope

26.03.2018 Нравится Ответить
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