So I was debating posting this here, but I feel like I would have quite a bit of support here... So a few months ago I was diagnosed with both lupus and RA.. A couple weeks ago I went to the rhumatolgist and had further blood work.. I went yesterday for the results and on top of the lupus and RA she also diagnosed me with scleroderma and an autoimmune disease called mixed connective tissue disease.. I was okay with all of the diagnosis' until she said that the average life expectancy of the MCTD was only 6-10 years after diagnosis.. I'm not posting this for pity or for anyone to feel sorry for me, but because I feel like I would get more support on this app then I would anywhere else.. I just want to ask you ladies to keep me and my family in your prayers as we're still trying to figure this out and wrap our heads around the news.. this is going to be hard, and it hasn't actually even hit me yet, but I'm just trying to stay strong the best I can! 💔😭
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I didn't know that! I'm just going off what my doctor had told me. Thank you for that info though ❤️
@momlife_x3 ❤ im here if you need to vent to talk or whatever it may be I don't know much about what you are going through but I can listen
Also, I would always suggest getting a second opinion mama.
Hugs for you. I'm glad you got it off your chest. You can always find a safe space here.
Thank you, yes that's why I decided to post here. I'm definitely going to try and find somewhere for a second opinion. I'm going to do some searching to find a place I feel comfortable with going to
@momlife_x3 yes. I think you have a good plan in that. Definitely find a place where you are comfortable. And remember that Drs are just people too and they can be wrong about a diagnosis ❤
@professor.hashbrown you're right! I'm praying that could be the case here 🙏🏻
This makes my heart sad 😞 I can’t imagine what you’re feeling right now. I’ll be keeping you and your family in my thoughts 💜
That's a lot to process. Is there a specialist in MCTD who can see you? There are treatments and trials being done all the time. Sending you all the prayers and love. <3
Honestly, I don't even know. I didn't ask many questions yesterday. When she told me and then asked if I had any questions my mind was just blank, but I did call back today with some questions and I'm waiting for her to call back. Thank you! ❤️
Also, she did prescribe me some medicine for the symptoms. But, MCTD it's self isnt curable
Omg love! I’m so sorry you know I’m always here no matter what!!
Thinking of you and the family ❤️❤️
Omg, I am sooo sorry!!
I am praying hard for you & your family 🙏🏼❤️
I am so sorry girl. You and your family are in my thoughts. ❤
Oh momma. You and your family are in my thoughts and prayers. ❤
I’m so sorry. I can’t imagine. You and your family are in my thoughts! 💕
You and your family are in my thoughts. It’s a lot to deal with
Oh my goodness, that's a lot to be going through mama. You are in my thoughts!
Omg!!! I am so sorry this is so much slammed onto you. Do not be sorry to post. You are sharing something sensitive here.
😭
I am praying for you and your family.
I can not believe this news. You must be spinning in worries.
Thank you! ❤️ I don't think it's even hit me fully yet.. it's going to take some time for me to accept it
@momlife_x3, oh my god🤧 this is something hard to swallow.
Yesterday I went out with my boyfriend went to watch a movie, me and him don't live together yet. but point is yesterday when he was dropping me off his like sleep over at my house witch the mom and dad lives. I said no,
his response was why is everyone deciding or making choices for you and their going to do the same with the baby, when I know that's not true. what he thinks is that my mom tells me not to sleep over. So he left all mad. and I felt in my heart that he went on and cheated on me...
Motherhood ripped from me again...
I went for my Anatomy Scan on Friday @ 20wks. I went in expecting to find out if my baby is a boy or girl, but came out feeling like I'm going to die.
Will your Mom be in the delivery room?
My mom made it sound like she was gonna be in the delivery room when I give birth, and quite frankly, I would just like it to be me and my fiancé. It's our first, and I want to share that special moment with just him. I don't want to hurt her feelings, and I know this is something she would really like to be a part of. So I feel bad telling her no.
Am I wrong to be upset? Last night I was running a fever, weak, tired, sore, my left boob feels like it got used as a punching bag. I asked my husband to call out of work today to help me with the kid so I could get some rest. He went to work. I texted him this morning. Part of me thinks I mean. The other part of me thinks I was fine for saying that because he should've stayed home with us.
Birth Plan Rant
I used to be all about getting an epidural, but after research and thinking about it more I want to have an unmedicated birth (this is my first baby). What annoys me is when I say that I'm going to TRY my hardest to have a natural and unmedicated birth people always feel the need to say that I'm crazy or that I'm going to change my mind when I get in that position. Or that epidurals are the best. I do realize that plans change, but why can't people be supportive and encouraging?
According to the National Institutes of Health, the 10-year survival rate for people with MCTD is about 80 percent. That means 80 percent of people with MCTD are still alive 10 years after being diagnosed.
I hope u get to feeling better girl. I'm sorry and u r definitely in my prayers