Diagnosis Update
We got ds's diagnosis today. He does have AML, and it looks like it is aggressive based off of his initial dna testing results. I am pretty ignorant at this point on it, but they're saying its aggressive based on the M5 and M7 markers. They're missing? I am not sure, and need to learn more about that part.
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Thank you all so much and also for looking into the registry. The thoughtfulness is truly amazing.
I am a mess this morning and still can't believe this is even happening. I took a moment to cry before I woke ds up. We will learn more about his type of AML (subtype) this morning, as well as what we can expect. I hate this, and everything he will have to endure. He's young and strong, and doesn't deserve this. They even asked him to consider banking sperm yesterday because this treatment can possibly make him sterile. No damn 14 year old should have to think about that. It all makes me so sick.
In lifting you and your son up in love and light.
For Canadians who want to be on the bone marrow registry it is done through Canadian Blood Services; you can also donate your cord blood. It is an international registry. I was contacted once to be a donor but wasn't selected as the closest match. I hope I'm am to one day able to be a donor unfortunately I'm about to age out of eligibility.
@not, we are going to bank dd2's cord blood and see if it's a match. However, since they're half siblings and dd2 is half Cambodian, it's not likely to be a match. We are going to try though. You never know.
Quick question: did you cord blood bank? Had my husband banked our daughters (my sd) cord blood our doctor told us she wouldn't have had to go through most of her treatment.. Maybe look into cord banks and see if that's an option. They don't have to be as closely matched as bone marrow.. Just a thought..
I'm so sorry, mama! I'm praying for healing, strength, and comfort for all of you during this extremely trying time.
My husband's aunt was diagnosed with a very aggressive form of AML early last year. They gave her a very somber prognosis, less than 20% odds and a short time.
I'm happy to report that she is completely healed and in remission for going on 9 months! I'm believing for his healing also!
@Natalie, it really is a beautiful thing. I would donate to anyone in need in a heartbeat.
I'm so sorry, but I agree... Now you have answers and a plan! BeTheMatch is a great place to start. I read a story about a little girl on Facebook and immediately signed up about a year ago. I took a quick quiz about my health then they sent a package of swabs I used on my cheek. It was fast, easy and painless. I actually cried thinking one day I may save a life. I haven't been connected to a match yet, but hopefully I will one day :)
@reinac, bethematch.org is the place to start.
I am also going on the national registry. Just need my lab results to get to them.
Thank you again for all of the kind words, prayers and well wishes. I hate this so much. So many emotions and such frustration, with the "How can I help? Could I have done something to cause this? Prevent it??" I know logically that it's all random and chance, but I can't help to think those things.
Thank you all so much for the kind words.
He is holding up okay. He isn't too verbal about it, but dh and I are making sure he gets any questions answered and will make sure he is as comfy as possible during treatment.
I'm a wreck on the inside, of course. So is dh. We will be keeping our strong faces on for him.
@cams, I am not totally sure, but I believe race is one factor in finding a match. The doctor we saw today asked about ds's race from both sides of the family. I know there are other factors, but I don't know what they are.
I hope your son will recover and be stronger then ever! It's a tough journey and I know that from personal experience, but you guys will get through it together. That's what family does. He needs you more then ever now, so please be as strong as you can for him. They're so much stronger than what everyone thinks. Wishing you all the best❤️
Yesterday I went out with my boyfriend went to watch a movie, me and him don't live together yet. but point is yesterday when he was dropping me off his like sleep over at my house witch the mom and dad lives. I said no,
his response was why is everyone deciding or making choices for you and their going to do the same with the baby, when I know that's not true. what he thinks is that my mom tells me not to sleep over. So he left all mad. and I felt in my heart that he went on and cheated on me...
TWW!!
2dpo and on the tww journey. Anyone on the same dpo or close? Haven't decided if I will test at 12dpo or just wait and see if she shows up!!
Short Luteal Phase?
I've just started temping because I believe that the reason I haven't had a BFP yet, after 20 months, is because I believe I may have a Luteal Phase Defect.
I'm so sorry, thinking of you and your family.