#mombassadorchat Moms,
#mombassadorchat
Moms,
Today we have a new chat with @smilingwithmyawesome4kids on Children with Special Needs.
Hello I am Ceiamaria, I have been happily married for 12 years and still going strong 💪. We have 2 special needs sons that require all our attention all the time. Ty Ty, is 8 years old he has OCD OCC bipolar ADHD schizophrenic and epilepsy autism speech disabilities learning disabilities . Dan Dan, is 7 years old he has mood disorder autism speech disabilities learning disabilities ADHD mood disorder. Both boys have IEPs attend speech therapy every week and both boys see a therapist. It's not Easy having special needs children . But we wouldn't change being their parents for nothing in this world. It's a challenge we accept with open arms 🤗.
Tips for a special needs child
1.) Speech disabilities is not Easy to recognize but if your child isn't speaking by 2 years old consult with your children's pediatrician
2.) Be patience
3.) Once your child is in school make sure they have a IEP and make sure the school is following the IEP
4.) Realize your child doesn't they are different make them realize that they are awesome.
5.) Realize before a IEP is in place the school will blame on a behavior issue.
6.) Attend the speech therapy
7.) Attend the IEP meetings .
8.) Read the entire IEP packet don't just sign it.
6.) Speak with their teachers regularly
7.) Teach your children they are Amazing
Please post your replies, questions and comments below. And @smilingwithmyawesome4kids will try to help. She also has a Kids with Special Needs group in the app!
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It's my pleasure to have the opportunity to tell about my experience with special needs children.
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I am SO ecstatic that this is finally a chat! My little sister is special needs and this is our life! Thank you mama! Bringing awareness 🙌🏻
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@smilingwithmyawesome4kids,
Iqra·
Мама двоих (1 год, 3 года)
my mom had to go through this with me so i know.... i have left hemiplegia... ppl said that she is a strong woman because some women in our culture just abandon children like us
Iqra·
Мама двоих (1 год, 3 года)
and now thanks to her i got the education and the brains to teach my kids... but if only i had a better life partner
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You're welcome 🤗@kailey.gallentine having 2 special needs sons is very challenging with appointments therapy and IEP meetings it can be hectic. Many people blame special needs on a behavior issue which it's not.
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@smilingwithmyawesome4kids, yes! It's so wild how strong they are with such crazy schedules! IEPs, OT, PT, ST. Everything under the sun and they still manage to keep on truckin. A lot of it is because people are unaware. Not necessarily uneducated but they just don't know until they experience it first hand. Props to you mama! Two boys is enough work 😂😘💙💙
victoria·
Oh man I live for these posts! I work with special needs children and I can only imagine how difficult it can be to manage sometimes; but yet gratifying to see when the child progresses in a new skill that child has been working on for so long, it's truly an amazing thing. I'm hoping to be a special needs teacher, with the grace of God I'll be able to obtain my masters with special education so I'm just praying for it. Thank for you being a dedicated mom to your boys, we need more people in general just like you!!! ❤️❤️❤️❤️❤️@smilingwithmyawesome4kids
Erin Wurth·
Мама двоих (3 года, 5 лет)
I don't usually talk about my disability. I think of it as a burden that if I told somebody that they would make fun of me. I have AS (asperger's syndrome). I was diagnosed at the age of 25. My younger sister has autism.
Michelle Stansfield ·
Мама дочки-младенца
Our little one will have some different special needs because of a fairly unknown syndrome called Sticklers. She'll have to wear glasses, we hope her retinas don't detach, but they could. She also has a cleft soft palate, a secondary issue that happens with Sticklers Syndrome. She'll need speach therapy, and she also decided that 7 weeks early was best for her! 😉
Tiffany Chase·
Мама сына (4 года), беременна (16 нед.)
This is my son Charlie he is 4 years old and he has autism he is in Occupational therapy speech therapy and physical therapy. He has got one word down and that is mom . He is my whole life and I wouldn't want him any other way! He has taught me so much! 💙💙💙💙
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Yes it is a challenge @kailey.gallentine and the crazy schedules is it very hectic. Today both boys had speech one had speech therapy at 8am and the other 10am yes 2 hours apart they Mommed me insane. But I absolutely love my kiddos
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It's definitely not easy but I wouldn't change being there Mother for nothing in this world thank you 🤗 @victoria_rodriguez93
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@smilingwithmyawesome4kids, 😂😂it always seems to work out that way! And of course 💙💙 they make us complete. It helps you appreciate the little things in life 😘
🩷Christina Marie Hernandez🩷·
I have a 4 year old and he doesn't talk much he just knows like 5 words and sometimes they're difficult to understand but he try's so hard and would get frustrated and starts crying when he doesn't get it right I have gotten him evaluated for speech therapy but they either take too long or they assume that I cancelled the visits when I call and try to find out what's going on .. I even called for him to be evaluated for school and the lady who they told me to call would never come to the phone I would always have to leave a voice message they would never get back to me it's really disappointing and difficult
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Don't be ashamed @emc1982 ignorant individuals make fun of special needs. You have realize your Awesome and their name calling doesn't matter
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She's absolutely beautiful 😍😍😍 @mermaidmeshy it's good that you got it early
Erin Wurth·
Мама двоих (3 года, 5 лет)
I'm very high up there on the AS scale. As you can see I have two boys,I'm married. I can also drive. In some ways it doesn't bother me, but in other ways it does (i.e. Insurance companies). I keep to myself, sometimes I'm shy but I can be outgoing. Thanks so much for you complement. It means a lot.
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@puertorianmommyof3 request a evaluation with his pediatrician this will get the school moving in the same direction. Also request a meeting with the school board tell them your concerns and let them know that his pediatrician ordered a evaluation this will get them moving in the right direction
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You're welcome love 🤗 @emc1982
🩷Christina Marie Hernandez🩷·
@smilingwithmyawesome4kids, I will get on that right away thank you love ❤️😊
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You're welcome love 🤗😘@puertoricanmommyof3
Michelle Stansfield ·
Мама дочки-младенца
@smilingwithmyawesome4kids we knew when we found out she had the cleft it's a $2,000 test, but with my husband's family history, we know. It would be a waste of money to find out what we already know.
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Special Need children are very expensive both of my sons are on expensive medicine @mermaidmeshy
Cassie Kirk·
Мама сына (7 лет), беременна (13 нед.)
Single mom with a nonverbal autistic son. He's 7 years old and we're doing wonderfully!
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Awesome to hear @cassienka
Hannah Clark·
Мама дочки-младенца
@smilingwithmyawesome4kids how old were your children when they were put on the spectrum? My 11 month old and I've noticed a few red flags. I have a few family members on the spectrum, so I know of what to look for, but I'm not sure when the line is drawn between a possible symptom and just baby behavior (if that makes sense lol).
Patience Ledesma·
I don't have a mental disability but I do have a physical disability. My disability causes me to be in a wheelchair permanently and I can say that when I was in school that my IEP was a very important part of me being successful in school. More so when I was younger and learning how to do things on my own. My mom always read through my IEP and made sure I understood what I was getting. She also took out the stuff that she thought I didn't need.
Christal🎃⛄·
@smilingwithmyawesome4kids girl my daughter has learning disability an speech disability its sometimes so hard
Christal🎃⛄·
But she goes to a school with a iep course but she is so smart even though she has disabilities im so proud of her @
Brooke H·
I'm a mom to 3 kids and my middle child. He is 6 and he had apraxia and adha. He does speech 4 times a week and physical therapy and OT twice a week.
Lashay Franklin·
Мама двоих (младенец)
@jcjackson83
Lashay Franklin·
Мама двоих (младенец)
@jcjackson83
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@scurlock.mommy Ty was 18 months and Dan Dan was 10 1/2 months when they were put on the autism spectrum . If you are noticing Red flags contact her pediatrician and have a evaluation done early detection is the best
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Many mothers don't read through the entire packet but I do I read every page and I also send a note what I don't agree with that's great that your mother did that @blue_jay1418
jazzy·
All early inventions help
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I understand it can be @mommieof2babies but keep your head up and remember God choose you to be her mother be her voice
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Special need children aren't dumb at all they just learn at a different pace and not one special need child is the same @mommieof2babies
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I offer kids with special needs on here @jcjackson83 and yes your absolutely right early inventions does help. But many parents don't want to accept they have a special need child.
jazzy·
@smilingwithmyawesome4kids, I totally agree some don't want except it because they feel their child/children will be treated differently but we as parents with special need children have to understand it not about us it's about the child who needs help.
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I couldn't agree more @jcjackson83 I never was in denial when they were both diagnosed with having special needs . I started doing research trying to find out .
jazzy·
Just be the best you can and remember that God doesn't put more on us then we can handle. I mean he chose us to be their parents he knows we have the super powers
jazzy·
It can be difficult at times but I cry and keep going because I have to!
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Yes he does @joynlove
selene duarte·
Мама троих детей
Im having the hardes time with my son :( i feel like i have done everything wrong.
Deon 🌻www.individualisticbeauty.com·
Мама четверых детей
You've given some very good advice! I have a special needs brother and it is very important for parents to be educated on their child's needs, rights and the services offered to them for support! Having special needs children require so much more effort as a parent. Just know that you are awesome and your children are lucky to have parents like you and your husband to care and love for them! 💕 @smilingwithmyawesome4kids,
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What's the matter @selene_drt maybe I can help you out ?
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Awww thank you love 🤗😘 @withlovedkj I really appreciate that it's definitely not easy but it's totally worth it I love my kiddos
selene duarte·
Мама троих детей
@smilingwithmyawesome4kids it took me 4 years to prove everybody that my son has autism because his doctor and dad wouldnt believe me. Now he is 5, he has ABA and honestly they dont really help him. He is doing worse than before🙁
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What are they doing for your son for his autism @selene_drt
selene duarte·
Мама троих детей
@smilingwithmyawesome4kids i will message you
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Okay momma 🤗@selene_drt
jaymi debraux·
I too am a mom of 2 disabled sons.
Victoria Randall·
Мама сына-младенца
Do you (the parents) also have mental health issues? Or is their a genetic link?
Kiana Green·
What age were they when you learned they were special needs children?
deleted-user·
I'd like to join your group. My 5 year old has moderate autism