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rachel
@m0thmama
United States, West Virginia, Gerrardstown
130
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21 & mom of two ✨

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Does Anyone Have a Child with Beckwith-Wiedemann Syndrome?
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Does anyone have a child with Beckwith-Wiedemann Syndrome? Alivia is having genetic testing next week for it because she has a lot of the physical markers for it as well as neonatal hypoglycemia which kept her in the NICU for 9 days, and they’re going ahead and testing Jacob for it as well in case they missed some genetic abnormality with him as well, especially since he has such a harsh speech delay. If they both end up having something, then I’ll likely stop having kids because 2 for 2 is a pretty high number to risk trying for a third thinking maybe that one will come out without any abnormalities. :/

Anyway, here’s my sweet Livvy Bug today at two weeks old 🌼
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17.03.2018
5
rebecca33 What exactly is the characteristics of it?
m0thmama @s.rebecca52, what she has is a port wine stain on her eyelid, creased ear, enlarged tongue, >99%
rebecca33 @m0thmama hmm I'll look at my daughter closer all ik she had at least idk if still
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How far along were you all when you noticed your first pregnancy related stretch mark?
11.01.2018
1
somebodysmama2 I didn’t get stretch marks until I was available it 36-38 weeks
mommytotheo Tiny ones on my side at 35 weeks then my belly got them at week 37
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Have to have additional testing because the doctors think there's a possibility that Alivia has a chromosomal abnormality. I know that no matter what, she will be perfect for us, but it's still so scary to hear this. No parent would ever want their kid to go through this.
12.11.2017
11
m0thmama @lnkedupmommy, yeah, I'm being referred elsewhere for a more in depth ultrasound and depending on how that
tayler @m0thmama did they day something specific about your ultrasound? Like cysts or defect?
ashleyclaraanderson @m0thmama, your a strong person know matter what have faith aswell; I hope everything goes well with
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