Mom.life
whitney
whtngregory
whitney·Мама подростка
I am a mom to an 8 year old boy with special health needa. we both have a genetic disorder that affects our daily life. I am currently 11 weeks pregnant. I have anxiety as well. I have stopped my meds and my anxiety has been really high lately. I am looking for support. this pregnancy is alot different then with my son. I am labeled high risk because of my elhers danlos syndrome. I have been having brown discharge and regardless the doctor said its probably old blood my anxiety is very high. I am scared due to how they labeled me and I can not seem to get a grip on my mind or anxiety. I need support. #myfirstpost
05.12.2018
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whtngregory
whitney·Мама подростка
It is. When my son was 15 weeks and just diagnosed with tracheonalicia gerd and reactive airway disease the dr told me the gerd could burn a hole through his under developed trachea and because his traecha was collapsing it was very important I watch him constantly to make sure his airway is opened enough to breath. I cried so hard and I was sitting with my grandpa feeling sorry for my son and not thinking I could handle this. My grandpa said to me "you will never be given anything that god doesnt think you can handle. You have been chosen to care for this boy because you can. You are attentive and you hold so much love for this boy. God gave you him because youre the only one he felt was strong enough assetive enough and brave enough to care and love him. You will get through this. Then he said a quote. Tough times never last but tough people do. And he pointed to both my son and I. My sons trachea fully developed he had 3 successful surgerys his lungs are stronger and we have an excellent treatment plan. It's hard to stay positive and my anxiety is always in edge but each day I don't think I can i replay that convo in my head and I keep moving. It's a struggle. I love my son with every ounce of me. I just need support to help me through my mental state
05.12.2018 Нравится Ответить
amandaw88
Amanda Welch·Мама троих детей
I don’t have Ehler’s but I have 2 nieces that do so I understand a little bit of what you’re going through. I know it’s hard but try not to stress. I know when my niece is stressed it seems her Ehler’s symptoms are the worst.
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amandaw88
Amanda Welch·Мама троих детей
@whtngregory, I worry about my nieces too. The oldest one is 19 and was diagnosed when she was 16 when her left lung spontaneously collapsed. She has several other issues too. POTS, dysautonomia, blebs disease (which is what caused her lung to collapse) and they’re still running genetic tests. The other is 14 and is having tests run too. It’s definitely stressful and we can’t help but to worry especially when they get sick or the one has any type of chest pain.
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whtngregory
whitney·Мама подростка
@amandaw88 my son has hypotonia he wears smos because his ankles arent strong enough to hold his body and he rolls them alot hes missing part of his hip he has reactive airway disease he has gastro issues his eyes are becoming weak he cant hear well out of one of his ears his leg bone is growing sideways he doesnt have the appropriate curve to his neck his muscles always spasm and bunch up. We have so many apts hes a trooper he doesn't complain. Hes so use to the pain that he doesn't recigobize when things are worsening so we are teaching him to pay attention to his body
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amandaw88
Amanda Welch·Мама троих детей
@whtngregory, oh my goodness. That’s a lot for anyone let alone someone so young.
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whtngregory
whitney·Мама подростка
I have worked with for 1.5 yrs at a mental health center and with a therapist to learn tools. I was done with the program. I didnt realize how hard it would be without meds. I use to have panic attacks had ativan to help now I cant do that and its hard to focus. My hormones are all over the place and I cry over everything. I'm trying its just hard
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susu8
Sarah·Мама сына (6 лет)
I know it’s so so hard. When I cut off the meds I had severe withdrawals I don’t know if your meds is causing any withdrawals but they do have safe anxiety meds for pregnancy that doesn’t cause withdrawals...I pray for you. Your gonna get thru this...it’s tough but just beleive that you will and keep your mind distracted and busy 🙏🏼
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whtngregory
whitney·Мама подростка
@susu8 i dont think I went through withdrawals. I stopped them 6 weeks ago. I'm trying. Its hard to find energy all I want to do is sleep and some days I drop my son off at school sleep then pick him up. Im super tired. Then somedays im like you cant sleep you need to do things
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susu8
Sarah·Мама сына (6 лет)
I used to be on medication for two years for my anxiety and weaned off slowly before I was trying to conceive. Now I’m medicine free but NOT anxiety free lol. It’s a challenge every day and I’ve started taking therapy and it’s helping so much she gives me real techniques how to get a grip on my anxiety....it can be overcome its mind over matter..but it’s a process..one that takes time, techniques, and determination..being pregnant doesn’t help either Sometimes I’m paranoid something gonna happen to baby & sometimes I still don’t believe I will get to hold my baby but I keep trying to positive talk as hard as it is..
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whtngregory
whitney·Мама подростка
And I stopped my meds because they were not ok for pregnancy they could cause risks to the baby
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whtngregory
whitney·Мама подростка
I worked with a therapist and went to mental health groups fir a yr and a half. I stopped going because I was at the point where I felt I needed to move on because they were aggervating me. I was on medication then and discussing weaning off then I found out I was pregnant. I learned some coping skills but I didnt realize being off the medication would not be easy. Ita just affecting me alot now and I'm not sure if its because of the discharge I cant help but jump to the worst case scenario. My boyfriend is super supportive but he doesnt know how to help me. He reccommended finding support with other pregnant moms abd to talk about what I'm going through. I'm not sure if im hormonal and have normal anxiety or if its just my anxiety over powering me.
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whtngregory
whitney·Мама подростка
I stopped my meds at 4.5 weeks cold turkey. Elhers danlos is a connective tissue defect. I dislocate easily I have pain all the time. My connective tissue is so flimsy I'm very flexible. The discharge is what im not comfortable with at all. I want the baby to be checked to ease my mind but they wont unless I'm bleeding red which luckily I'm not.
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raisingblueyedbabiesx2
Dusty ·Мама четверых детей
Why did u quit talking ur meds? And what is alhers danlos syndrome? But hang in there momma and ik it's hard but stress is no good on baby try to relax
05.12.2018 Нравится Ответить
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