Since June 2018 I've been having joint pains and up to now the pain has increased and I'm losing…
Since June 2018 I've been having joint pains and up to now the pain has increased and I'm losing mobility in right my arm.
After several visits to the doctor and ER I was finally referred to the rheumatologist specialist.
I seen the RA Monday and they did blood work, X-ray, and gave me steroids.
I emailed the RA today and she said that my blood work and X-Ray came back normal and that there are a few more tests pending.
I'm worried that they will say it's nothing and brush me off.
I've always been healthy for the most part, healthy pregnancies and I'm not into sports or anything strenuous that would cause this.
It's great that my blood work and X-rays are normal, but it sucks because I feel like I'm suffering with pain every day. I'm suppose to start a new job next week and the RA said that wouldn't be a good idea. It's limiting me every way possible and making me extremely depressed.
And I feel like everyone around me thinks I'm exaggerating because it's on the inside and not the out.
All I hear is just be positive but it's hard when I keep getting the run around from doctor to doctor. I can't enjoy outings with my children, can't start my new job, my goals went from a 3.5 all the way down because I'm in constant pain.
Sorry for the long rant, just needed to get that off my chest to someone.
L·
Мама двоих (младенец)
I'm sorry to hear that you don't have any answers -yet- . Keep at it with the doctors. Let them know if the steroids aren't helping, and get pushy! You have to get loud sometimes in order to get help. It took literally a decade of me going through so much undiagnosed pain to get my diagnosis, but they finally figured it out.
I know what you feel though about having an invisible disease. You look fine on the outside, so when you express that you're in unbearable pain, people look at you kinda sideways. There's been a lot of research into that, and people with autoimmune diseases frequently downplay how bad they're actually doing so they don't worry their family. You aren't alone... Even though it feels like it sometimes. I hope that the RA will continue to look into what's going on with you and find a solution.
Jasmine J·
@techie_grrl, hey! I remember you from my last post. No real responses yet, but hopefully soon. And you're absolutely right about getting pushy, they always brush me off.
Thank you for your kind words, it's nice to know that someone else understands.
L·
Мама двоих (младенец)
@jassj anytime 💕
It makes me so angry when they brush people off. They did it to me for so long that I actually felt crazy. The first doctor, my rheumatologist, that believed me felt surreal.
Jasmine J·
@techie_grrl, sorry for such a late response, but I know you've been very supportive of my situation. My doctor said that I came back positive on one of the test for drug induced lupus
L·
Мама двоих (младенец)
@jassj I'm glad you got an answer!!! Do they know what drug caused it? In my case, the HPV vaccine (Gardasil) is what set my lupus off. While I'm sorry to hear that it is, in fact, lupus for you, having an answer is good. Now your doctor can move forward with a treatment plan.
Jasmine J·
@techie_grrl, Yes, thankfully. I was unaware that lupus could be brought on due to medications. I will see my doctor tomorrow and hopefully find out because she said she looked at the medication on my chart and didn't see any meds that would cause this. Things are still unclear at this point unfortunately.