I have been suffering from pelvic and hip pain and achy joints since June 2018. I've had tests, MRI…
I have been suffering from pelvic and hip pain and achy joints since June 2018. I've had tests, MRI and cat scans done and nothing. Sometimes I can barely walk because I have muscle spasms in my legs and feet and they feel really weak at times. My doctor prescribed me two 800mg Motrin a day and nothing works. Now I have a rash spreading across my face, ears and neck. I've been nervous that maybe it's possibly symptoms of lupus but I don't want to jump the gun and assume.
I'm 26, and I've never had any problems like this ever. (Not pregnant btw)
Any advice or similar situations would be helpful?
L·
Мама двоих (младенец)
I have SLE (lupus). There are several markers for it, and if you suspect you have it, ask your doctor to run some blood work to check. The "lupus rash" usually only goes across nose and cheeks, but it can vary occasionally. I was having really bad pain and my doctor ran a blood panel, which came back ANA positive. The blood test doesn't always work, so they will take in mind your symptoms. Hopefully though, it isn't lupus... It's a huge world of autoimmune disorders, and I wouldn't wish it on anyone. But the easiest way to test is via blood work.
Jasmine J·
@techie_grrl, thank you for responding. I have a doctor appointment tomorrow, so I will ask for them about doing a blood panel. But hopefully it's not anything major. ❤️ thank you!
L·
Мама двоих (младенец)
@jassj no problem! If it does come back as lupus though, let me know and I can give you some tips on managing it. I was diagnosed back in 2013, so I've been through a few different treatments.
Jasmine J·
@techie_grrl, I will thank you so much! I sent my doctor a message yesterday stating that the pills weren't helping and the pain is progressing. She called me today and suggested I go into urgent care. Everyone just runs regular blood work and sends me off. I've always been healthy for the most part and never experienced any of this before. It's like everyone just sends me off without helping, it's frustrating!
L·
Мама двоих (младенец)
@jassj , I feel for you 😢 it was literally a decade in and out of the ER until I got my diagnosis. At one point, a doctor suggested a morphine pump because of the pain I was constantly in, but at 19, I just didn't want that. The pain med that has worked best for me is tramadol. The doctors had me on Loritab, but I hated feeling jittery and hot all the time, so I asked for something non-narcotic, which at that time, tramadol was not in that class. I didn't react as strongly to it and it actually keeps my pain level down.
Anyways... If you do go to the ER, mention that you suspect lupus and would like them to run the Anti uclear Antibody (ANA) test.
Jasmine J·
@techie_grrl, oh man I'm sorry to hear that, but glad you were able to be diagnosed and find something to help with the pain. I hope things are better for you! And I will be sure to mention it to the doctor tomorrow.
L·
Мама двоих (младенец)
@jassj once you know what you're up against, it'll be better. Good luck tomorrow at the doctor's!
Jasmine J·
@techie_grrl, thank you! 😇😇