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Stephanie Tyler
bignell.stephanie
Stephanie Tyler
Anyone have a heart warrior? Or have had Vasa Previa?
07.05.2018
2

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mssasz90
mssasz90
I just found out I have previa, I’m not sure what vasa previa is ?
25.05.2018 Нравится Ответить
techie_grrl
techie_grrl
My little guy has a g tube, as well. It's such a different adventure than with my daughter who came at 38 weeks, perfectly healthy.
07.05.2018 Нравится Ответить
matronmagyk
matronmagyk
Not Vasa Previa, but my youngest son was born with DORV, TGA, HRHS, ASD, VSD, Etc ... we are post-fontan and doing really well... if you have any questions I'd be glad to help or maybe point you in the right direction if I am unable..?
07.05.2018 Нравится Ответить
bignell.stephanie
bignell.stephanie
Our daughter was born with CHD. She has had 3 open heart surgeries, has a trach with vent and a G/J tube. She was in the hospital 366 days. She came home for the 1st time the day after her 1st birthday.
07.05.2018 Нравится Ответить
mommyof.3
mommyof.3
I do! My son had a VSD repair in February and a pacemaker placed in March!
07.05.2018 Нравится Ответить
techie_grrl
techie_grrl
I do! My son has VSD (Ventricular Septal Defect) as well as narrowing of the aorta. This is a step down from his original diagnosis of Tetralogy of Fallot while in utero. He will be getting a repair at around 6-8 months.
07.05.2018 Нравится Ответить
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