Anyone have a heart warrior? Or have had Vasa Previa?

I do! My son has VSD (Ventricular Septal Defect) as well as narrowing of the aorta. This is a step down from his original diagnosis of Tetralogy of Fallot while in utero. He will be getting a repair at around 6-8 months.

I do! My son had a VSD repair in February and a pacemaker placed in March!

Our daughter was born with CHD. She has had 3 open heart surgeries, has a trach with vent and a G/J tube. She was in the hospital 366 days. She came home for the 1st time the day after her 1st birthday.

Not Vasa Previa, but my youngest son was born with DORV, TGA, HRHS, ASD, VSD, Etc ... we are post-fontan and doing really well... if you have any questions I'd be glad to help or maybe point you in the right direction if I am unable..?

My little guy has a g tube, as well. It's such a different adventure than with my daughter who came at 38 weeks, perfectly healthy.

I just found out I have previa, I’m not sure what vasa previa is ?