I'm so nervous and excited about this week! Tomorrow lo has to be put out to get a CT scan. They're going to look at the hole in his heart and see if his blood clot is gone. If it is he can come off his blood thinner (a shot twice a day) and stop getting blood drawn every few weeks! Wednesday gets getting an EEG to make sure he hasn't had any seizures (we haven't seen any). And if his brain waves are good he can wean off his keppra! We found out last week after 3.5 months of crying and no answers from drs that the keppra is what has made him so angry (keppra rage). Though he's been happier the past two weeks, I'm hoping he will do okay coming off it cause then we can finally have a happy baby! Then Friday he gets a check up from the ent to check his tracheomalcia and I'm going to ask if they'll clip his ties. Everyone please pray he can come off all his meds and do fine without them! It's been a terrible, stressful, emotional ride from birth and I feel like we might be getting somewhere now but am also scared that with good news will follow bad news like it has seemed to happen for the past 4 months. Little man has had no break