Mom.life
Rachel Welch
zombie_kitty69
Rachel Welch·Мама троих детей
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Hello I'm Rachel, I'm 19 and a FTM of a little boy named Mason Wayde((due 01-01-2016).

Now to my story. This is what happen at the appointment Thursday, June 25th... A lot was going on, first a normal ultrasound and was told fine, then I went to go wait to schedule for a follow up then the heart breaking news got told to me and had me curled up in codys(LO father/my fiancé) arms crying, there's a lot of fluid in the baby's neck skin like the other doctor(normal ob)measured a 6.9((really bad)week before on Friday the 19th) but then today at a different ob they measured 3.4((still bad but better)last week Thursday the 25th), idk how nearly a week makes a giant drop of 3.5.. but now have to do all these blood work tests to see why and if the baby will even make it...but they put me as high risk so I have to be extra careful and shit or I can have a miscarriage even faster, if I even have one.. If any part of the test comes back positive they will take a really really long needle and put it through my stomach and into the baby's sack and pull out some fluid to test it, this test gave me great news but also horrible news. My son tested positive for trisomy 18 and he fights every day for life... However his heart beat is a strong 155-160 beats per minute and always kicking up a storm and seems to be the happiest baby ever and weights the 4oz that he's meant to weight at this stage, however he doesn't measure a 4.5in he actually measures at a 4.2in. All though he has trisomy 18 he's a fighter and I can see it for sure, his bladder has enlarged a lot but at my last appointment it looks as if it's getting smaller and all they could tell was a odd looking left foot((clubbed left foot)) and the rest was perfectly fine((THANK YOU GOD! THANK YOU PRAYERS AND LOVE)) the bladder is the black empty space/bubble forming in his body from 10.5 weeks all the way up to 15.5 weeks. Come 18 weeks at the ultrasound they said that the bladder is getting smaller and he's peeing and swallowing 19weeks now and he's still a strong fighting little boy, and I'll continue to help him, he's my son. The last measurements had him measuring at the right size and weight for his size which was 7oz and 5.5inches long. They didn't see ANY heart issues at all just a clubbed foot. But now what has changed farther into the pregnancy, a heart defect showed up and he has 2 VSD's((found that out September 14th). There's so many days I struggle and it just seems so unbearable and makes me get depressed.. I try not showing or ever talking about it because it always seems to dig deeper and cause me to blame myself and beat myself up, it hurts to be so tough and have my own depression but then now with hearing about my son it just makes everything worse, at times I wish I could change things but I've committed myself to staying strong and will fight with him and for him.. I have an fb page I can give out to the ones that want to follow it, and also have a gofundme account.. IM NOT ASKING FOR YOU TO DONATE OR ANYTHING but it's your choice if you'd love to help me out with medical costs for a special needs child.

Here's a list of all his issues:

-2 vessel umbilical cord

-bilateral cleft lip

-bilateral cleft palate

-clenched fists

-clubbed foot

-bowed leg

-key holed bladder

-left side of the heart is smaller than the right

-2 VSD's in the heart between the bottom 2 chambers

07.11.2015
9

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jsnowardt12

Praying sent to you and your lil man ❤️

07.11.2015 Нравится Ответить
ktwins188
Kassandra·Мама троих детей

I'm so sorry for your little man. he's in my prayers .. he's such a fighter<3 ...

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zombie_kitty69
Rachel Welch·Мама троих детей
стикер
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summerbaby16

I'm so sorry. I'm wishing you the best!

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jess_coff
Jessica Coffman·Мама двоих (9 лет, 11 лет)

I lost my son at 23 weeks to trisomy 18, 3 years ago. I'm praying for you and your baby!

07.11.2015 Нравится Ответить
brandylemonds15
Brandy Lemonds·Мама дочки (9 лет)

Wow that's amazing !!! He certainly sounds like a little fighter 💙

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zombie_kitty69
Rachel Welch·Мама троих детей

@brandylemonds15, he's doing well so far, he's made it to 32 weeks and showing the doctors how strong and how much fight he has in him along with his 2 VSD's he's actually starting to grow a tissue to close them :) I posted a photo in my photos of his heart if you'd like to see it

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brandylemonds15
Brandy Lemonds·Мама дочки (9 лет)

Praying for you and your sweet little man , if I could I would happily donate I hope he keeps improving

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zombie_kitty69
Rachel Welch·Мама троих детей

Thank you @mamadev the prayers mean a lot, they've helped me through this so much

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mamadev
Devin·Мама сына (11 лет)

Sweet baby ❤️ praying for y'all !!

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zombie_kitty69
Rachel Welch·Мама троих детей

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zombie_kitty69
Rachel Welch·Мама троих детей

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