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MummyMir

Судьба мальчика с гидроцефалией

My sweet boy has been diagnosed with hydrocephalus. He has a build up of fluid on his brain. He has to have brain surgery on Tuesday where a shunt is put through his head, and into his stomach to drain the fluid. He will have this condition for the rest of his life, this will also mean multiple brain surgeries to change the shunt over time. He will always be at risk of it becoming infected. This also means my sweet, precious darling boy is permanently brain damaged and possibly blind. Since being born his eyes have always shaken side to side, up and down and in a circular motion. I was told when he was born multiple times it is normal for a baby to do this with their eyes, I said plenty of times this is not normal, I have five children and they have never done this. He doesn’t smile, no baby sounds, he doesn’t engage. His reflexes aren’t what they should be. I am beyond heart broken. I can’t believe my baby boy is going through this. I am sick with worry about this surgery. Honestly, I can’t believe any of this is happening. Please pray for my baby boy

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Комментарии

jessie23xx

Jessica🦋

I’m so sorry you’re going through this😞couldn’t imagine going through it. Praying for him🙏🏼and hope all goes well with the surgery thinking of you all❤️xx

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chelsea2018

Chelsea

Awwww so sorry lovely, hope his surgery goes well I’ll be thinking of you all❤️

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kbennett85

Kelly Bennett

Многодетная мама (5 детей)

Sending lots of love, such a hard time for you right now. No matter what, your little boy will grow to be amazing.

My little girl is blind, her eyes do this too, it’s called nystagmus, just so you have a name for it. In our case it is a secondary condition, which sounds like it’s your case too, his brain isn’t controlling the eye movements.

You will go through many emotions, break down as much as you need to, you’re allowed to feel like that. You will still be amazing and strong because you will get through the other side. It’s amazing how much strength we find to fight for our children.

I hope you have a good support network around you xx

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