Hug your babies, ladies!
I'm not sure where to start, but some of you know that I have a 14 year old ds.
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Thank you, ladies.
We were able to speak again with the pediatric oncologist. She said there is definitely something there that she doesn't see as self-resolving.
She said the marker she is seeing now is an immature stem cell marker. ~8 to 10% of his marrow is showing this. In order to be diagnosed with leukemia, at least 20% needs to show. She said that the marker isn't evenly distributed throughout the marrow, so that's why they'll take it from both hips next time.
They're also running other tests, but they take time. These include testing for DNA/ genetic abnormalities. She said it's not likely that is the problem, but they need to rule everything out.
Poor guy, his Picc line caused a blood clot, so they had to remove it early this morning. So we aren't sure he will be discharged today. He will also get another transfusion since his platelets have fallen to 27k.
I'll keep you all updated as much as I can. Thanks again for the continued thoughts and prayers. You have no idea how much it means to us.
He's hanging in there. Levels aren't drastically dropping.
Yesterday, the pediatric oncologist came in and told us that the latest lab results show that it's NOT aplastic anemia. He had a small percentage of abnormal cells in the marrow they took, but the characteristics aren't defined enough to diagnose. She said there is one potential marker that could be a sign of leukemia.
So we wait. He should be getting another marrow biopsy later this month, and they may draw from both hips.
He should be discharged tomorrow, as long as he doesn't have fever, and his levels don't show any drastic changes. He has a Picc line in place for treatments in the meantime. He will finish this year at home school.
He's super tough! He's staying positive and staying as busy as he can. Thank you for your thoughts and continued prayers!! We appreciate it greatly!
They say they're 80% sure it's not cancer. The reason why is because of two things.
1. When they were doing the biopsy, his marrow came out easily. Cancerous cells tend to be compacted and do not come out easily.
2. They didn't see any leukemia cells under the microscope.
They do have to finish running all tests to confirm, but are pretty certain it's aplastic anemia. Oh we are so thankful and counting our blessings right now.
@amunoz, they were saying that a full blooded sibling would be the best option for a marrow match, but ds doesn't have any. He's got a half sibling and of course we have one on the way.
We are hoping to be able to have the option of using her cord blood for treatment! I am getting conflicting information on that though, so will need to have further discussion with the oncologist.
Thank you all so much! He is a strong kid, and his body is fighting hard!
We are so thankful that we can get him the help he needs. Such an unexpected event for him, and we are all taking it one step at a time.
I'll say a prayer for your DS. Life is so full of unexpected turns and there is never a sure fire way to prevent these things from happening. Stay strong! I echo your sentiments in saying to holding your little ones tight and close and never take them for granted. Shower them with love and attention and prepare them for this tough and crazy world we live in
Praying for you all, I hope your son has a speedy recovery! ?