Update on Isabella ? So as you may know She had heart surgery At 10 weeks old a lot earlier than expected As she went…

Update on Isabella ?

So as you may know She had heart surgery At 10 weeks old a lot earlier than expected As she went into heart failure! The surgery went as well As it could as her heart was more complicated than expected! Well after surgery they realised she had two holes, one was bigger than they would like and was a concern! They have been seeing her every 2-4 weeks since and we're talking about surgery again! And a procedure where they put a catheter in her groin to go and check the pressure in her lungs as the holes could be damaging them. She's on 3 different meds two twice a day and 1 3 times a day and has been since a week old! I've stopped her two reflux meds and she's fine ? today her

Isabellas heart ❤ Had a check up today and she's doing brilliantly they said it looks like the vsd she was left with after complete avsd surgery has closed! He was so shocked he said after her surgery they were very disappointed with the outcome of it, and we're almost certain she would need more very soon! But nope she's done it all herself!! And she's finally off all her meds!! A year ago today she went to the Royal brompton and they started her on medication and after exactly a year of being on them we are now heart med free!! So proud of my amazing heart baby!!! She's such a super star!!!! ?❤ ?

Update on Isabella The consultant came today as she was quite bad this morning!! They have decided she needs her heart…

Update on Isabella The consultant came today as she was quite bad this morning!! They have decided she needs her heart operation earlier than expected! So they are thinking the 1st of May! Xx

Hi Moms and Moms-to-be, We have two moms that would like your support and advice during very difficult times. - Last…

Hi Moms and Moms-to-be, We have two moms that would like your support and advice during very difficult times. - Last week @rebcamdot's baby was diagnosed with a Congenital Heart Defect called Transposition of the Great Arteries. Her labor will be induced early to avoid a spontaneous birth and her son will go to the NICU before having surgery a few days later to fix his heart. They will sever the Aorta and the Pulmonary Artery and switch their positions. She's terrified and is having a hard time finding any other moms who have had babies with this condition or have a CHD diagnosis. She would really appreciate being able to connect with someone who understands what she's going through. - Also, @nikolai_mommy15's 1-month old baby boy was diagnosed with GERD and a heart defect. One of the valves in his heart is a little smaller than it should be. She's seeing a pediatric cardiologist and is scared about her son needing surgery at such a young age. If anyone has advice or experience with this, she would really appreciate it. Thank you! Preggie_USA

Thought I'd post a recent picture of Isabella! You wouldn't think she had serious major open heart surgery 4 weeks ago!…

Thought I'd post a recent picture of Isabella! You wouldn't think she had serious major open heart surgery 4 weeks ago! She's such a happy baby!! 14 weeks now!! Where has time gone!!!!! ?

Moms, Two-month old Athena, daughter of @Athenas_mommy, is having cranial surgery for a fused forehead that she…

Moms, Two-month old Athena, daughter of @Athenas_mommy, is having cranial surgery for a fused forehead that she developed in the womb. The doctors are reconstructing her entire forehead, which will leave her unable to see for a week or so. And her recovery may be a long process. Please keep Athena and her family in your thoughts and prayers. If you'd like to leave a message, you can contact her mom or write a comment here. Best wishes, Preggie_USA