The doctor called.
They're going to discontinue her feeds altogether and remove her feeding tube. The feeds and medicines going in the way they are are what's causing her to be in respiratory distress. They are going to be inserting a couple of things under her skin to give her her medicine, that way she could sleep peacefully and be as comfortable as possible. It has been 3 days without any fluids or food, she has been awake and alert on and off but still very congested.
She is still very lethargic and not really reacting or responding to any touch, diaper changes and clothes being changed.
The girls can go to the hospice unit with us but I am trying to find someone to watch them for a while, so there is a little less to worry about.
We are not sure how much more time we have with her, but all I know is time is ticking.
Your love and prayers are very much appreciated! We do have things set up to where you can make donations, feel free to direct message me for any questions.
Im so very sorry you and your family are experiencing this. I pray for you guys and am sending love
Aww she is a beautiful little girl. My heart goes out to you and your family, I will be praying for you and the family ❤
My heart hurts for you. ❤️ you are such a strong momma. My thoughts and prayers are with you and your family
This broke my heart In so many pieces. I'll keep you guys in my prayers😓
sending everyone all the love in the world my heart soul and prayers are with that beautiful Lil girl and all of you 💖💖💖💖💖💖💖🙏🙏🙏🙏🙏