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Stephanie W

Wanted to update you all

Wanted to update you all


I will be 28 weeks tomorrow and despite what they say will happen or won't happen Vincent is doing great. He's not supposed to be able to grow properly, but he's growing normally and measuring on time, he shouldn't be able to move so well, but he's a little partier in there, kicking, moving and rolling. His heartbeat is normal but you can slightly hear the murmur now that he's bigger. His left foot is already slightly clubbed which is to be expected of Potter's babies. I will probably only make it to 36 weeks, as that is the average gestation for Potter's babies.

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Комментарии

deleted-user

deleted-user

God bless you op..and your baby

deleted-user

deleted-user

Honey, I'm so sorry you are going through this. No mother should go through the pain of seeing their babies go. You will have an angel watching you and I'm pretty sure this whole experience will make you stronger. I'm going through a difficult time myself with my unborn child (will most likely be born with half a heart and mortality rates are high) and I don't wish it on anyone. My thoughts are with you and your sweet baby.

deleted-user

deleted-user

This made me cry. You are a strong woman. Sending hugs your way.

deleted-user

deleted-user

I'm so sorry you're going through this. I'm happy that you were able to find someone supportive. I'll be saying a prayer for you.

deleted-user

deleted-user

Hugs mama.? your strong beyond all.

deleted-user

deleted-user

I am so sorry you are going through this. You sound so strong and Vincent is lucky to have you as his mama


I will keep you in my thoughts and prayers ❤️

deleted-user

deleted-user

This just breaks my heart. I'm so sorry you are going through this. Stay strong!

deleted-user

deleted-user

God bless your heart and soul mama. And your boys'. There are no words.

deleted-user

deleted-user

Thinking of you and your darling baby Vincent x

deleted-user

deleted-user

What an awesome selfless mother! May God bless and comfort you.

deleted-user

deleted-user

My heart is breaking for you! This just isn't fair! It's just one thing I'll never understand why this happens. Many thoughts and prayers to you. I can't even imagine. I'm so sorry!

deleted-user

deleted-user

Prayers mama and happy you found someone to comfort you through this difficult time.

deleted-user

deleted-user

I'm so sorry you are going through this. Prayers

deleted-user

deleted-user

Prayers for you and baby Vincent

deleted-user

deleted-user

I'm so sorry. May you find a bit of peace during this sad time. I'm glad you found some support. Praying for you and baby Vincent.

deleted-user

deleted-user

??

deleted-user

deleted-user

Prayers for you both.

deleted-user

deleted-user

This hurts my heart, I'm so sorry you're dealing with this, praying for you!

lilin_13

Stephanie W

Thank you ladies.

I'm enjoying every moment I have with him. I have an ultrasound Monday and hope that they can get a good pic of him, but due to the fluid issue, Idk of it's possible. We're hoping he's still head down, so that birth will go smoothly, we're trying to prevent a C-section due to the blood thinners I am on.

deleted-user

deleted-user

My heart breaks for you :( you are a strong woman OP. Praying for you and Vincent.

deleted-user

deleted-user

I had to google what a Potter's baby is.

My heart breaks for you. I am so sorry that you and your son have to experience this tragedy. A mother's worst nightmare.

Cyber hugs and love for you.

deleted-user

deleted-user

?❤️

deleted-user

deleted-user

Praying for you and Vincent. I'm so happy that you have these moments with him and that he is exceeding expectations. You are such a strong person and are in my thoughts.

deleted-user

deleted-user

Wow, two babies will be lost. I'm so sorry. Prayers are with you.

deleted-user

deleted-user

I am so very sorry for your loss I just Googled to see what this was and I couldn't imagine being in your shoes. I pray that you have the strength to get through this and that maybe the drs are wrong! My heart breaks for you.:( big hugs sweetheart hang in there I am here if you need to talk. Xxxxxx

lilin_13

Stephanie W

The amnioinfusions were my first search. No place would do that in my case because of his bladder missing also, only diagnostic ones would be performed. It also proved to be dangerous, as they did a diagnostic one for the ultrasound and MRI and it cause my cervix to start thinning and opening. The infusions are performed in the same way as an amniocentesis and would have to be done twice a week. If I could do it, I would, no matter the pain it causes.


The woman who has a child surviving is an important person with millions of dollars to spare. The child has been on dialysis for about 2 years and still has not been approved for her transplant. Sadly, it's still not promised that she'll survive.

deleted-user

deleted-user

I am so sorry, I am praying for you. Hugs!

deleted-user

deleted-user

I lost my son Jaxon due to potters in 2012. We lost him at 21 weeks he also had a heart condition... your an amazing person... your in my thoughts....

deleted-user

deleted-user

Oh my word.....I'm praying for you momma! This breaks my heart for you, you're in my prayers.