Wanted to update you all
I will be 28 weeks tomorrow and despite what they say will happen or won't happen Vincent is doing great. He's not supposed to be able to grow properly, but he's growing normally and measuring on time, he shouldn't be able to move so well, but he's a little partier in there, kicking, moving and rolling. His heartbeat is normal but you can slightly hear the murmur now that he's bigger. His left foot is already slightly clubbed which is to be expected of Potter's babies. I will probably only make it to 36 weeks, as that is the average gestation for Potter's babies.
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The amnioinfusions were my first search. No place would do that in my case because of his bladder missing also, only diagnostic ones would be performed. It also proved to be dangerous, as they did a diagnostic one for the ultrasound and MRI and it cause my cervix to start thinning and opening. The infusions are performed in the same way as an amniocentesis and would have to be done twice a week. If I could do it, I would, no matter the pain it causes.
The woman who has a child surviving is an important person with millions of dollars to spare. The child has been on dialysis for about 2 years and still has not been approved for her transplant. Sadly, it's still not promised that she'll survive.
I am so very sorry for your loss I just Googled to see what this was and I couldn't imagine being in your shoes. I pray that you have the strength to get through this and that maybe the drs are wrong! My heart breaks for you.:( big hugs sweetheart hang in there I am here if you need to talk. Xxxxxx
Thank you ladies.
I'm enjoying every moment I have with him. I have an ultrasound Monday and hope that they can get a good pic of him, but due to the fluid issue, Idk of it's possible. We're hoping he's still head down, so that birth will go smoothly, we're trying to prevent a C-section due to the blood thinners I am on.
Honey, I'm so sorry you are going through this. No mother should go through the pain of seeing their babies go. You will have an angel watching you and I'm pretty sure this whole experience will make you stronger. I'm going through a difficult time myself with my unborn child (will most likely be born with half a heart and mortality rates are high) and I don't wish it on anyone. My thoughts are with you and your sweet baby.
Oh my word.....I'm praying for you momma! This breaks my heart for you, you're in my prayers.