I feel like I can finally post my story on here so here goes... Me and my boyfriend planned our pregnancy, yes we're…

I feel like I can finally post my story on here so here goes...

Me and my boyfriend planned our pregnancy, yes we're young but we wanted a baby. We were already living together and we got married when I was about 6 months pregnant. Shortly after that in the beginning of my third trimester we found out that the baby had something called an umbilical vein varix. This basically put her at a high risk of being still birth especially the longer I carried her and it scared the hell out of us.

When I was 38 weeks and was done with baby showers and all, we started trying EVERYTHING to induce labor.....including sex. So we're going along doing our thing and when we were finished there was blood EVERYWHERE. I was panicked. We thought we had lost her. So we rush to the E.R. and are told that it was normal and I was in labor at 5 c.m. several hours later I gave birth to a perfectly healthy baby girl. We had a normal day and a half - two day hospital stay and then are released home. I enjoyed the hell out or my first day home with our little girl....but the next I wasnt feeling all too perfect, worried I was getting postpartum depression. My husband and mother also noticed I was definitely not myself. So the next day, when baby girl had a well check-up appt. we also had the Dr. take a look at me where I was then, without much explanation, airlifted to a bigger hospital.

We were finally told that I was in multi system failure. My liver, kidneys, and heart were failing me. My blood pressure was so high I was at risk of having seizures, so they put me on some medicine that basically paralyzed me. I couldn't talk or move. When I attempted moving it was like super slow motion. When I was sleeping that night I felt like I couldn't breathe, and I couldn't even move my arms to get the nurse call button. Luckily they were doing rounds and I tried my hardest to speak to tell them I couldn't breathe and they got me off of that medicine. But they were giving me so much and a high dose that it was in my system for about a week.

To make this a little shorter.... I was in and out of the ICU, went into respiratory distress several times where I couldn't breathe and had to be on bipap, I had blood transfusions, plasma exchange, and dialysis treatments for an entire month. I got poked and tested so many times, had so many doctors and nurses that I gave up trying to remember their names. I watched my family and husband sit around, cry, and think that I was gonna die without them being able to do anything to help. I missed out on precious time with my daughter, was no longer able to breastfeed like I wanted, and felt like I lost my bond with her. I remember crying and crying for days when they finally put me on antidepressants.

After my very long one month stay there, they finally decided I had some rare incurable disease called aHUS that attacks your organs. I was released but I have to have chemo treatments every two weeks at the cancer center. I had to go back to the hospital another two times after. So altogether I spent a month and a half in the hospital but my organ levels are starting to look better, though I still have to do my chemo treatments indefinitely. But I'm home with my husband and our baby girl and feeling a lot better.

Edited: also I've been told that I can not have anymore children, that the same thing would happen again and I would likely die.....this broke our hearts as we both were hoping for a boy the next time around....we've talked about maybe adopting in the future.