Tara18
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

Do any mommies here have experience with epilepsy in young children? I have some questions.

02.11.2017

Комментарии

blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@dashtikalin, you're welcome! Anytime! I completely understand! Yeah, it's difficult seeing anyone seizing. That's a good sign that he's still fully active and it's not slowing him down. Maybe you can talk to someone and just try not to stress so much. It could be too you are overwhelmed and it's making you get extra worried. Don't forget you are important too! You have to take care of yourself in order to take care of your little ones. I hope everything is okay. Just keep faith.

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

@blessedmama09 It's been going on since he was several months old, and he's a little over 1 now. It freaked me out a lot when he first started doing it because I had never seen a baby act that way after a nap, but it's never seemed to slow him down any, and he's definitely not mentally slow because of it. Maybe it is some kind of PTSD on my part, because honestly whenever he does it, it reminds me so much of the first time I had ever seen my sister seize. I think if it gets any worse, I will definitely take him to the Dr for it. We have made it this far without any issues besides me getting super freaked out, though. So I guess that's a promising sign. Thanks for your advice and listening to my paranoid ramblings haha:)

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@scottiesmommy, thank you!

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@scottiesmommy, sure, thank you!

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@dashtikalin, go with your instincts! You are momma bear and if you don't feel right then get him checked out. Your are the best person who knows how he is and his normal self. It's possible that you are traumatized. My son is 6 and started having seizures when he was 2 weeks. After seeing a loved one suffer like that you'll never be the same. I've heard you can get ptsd from having to always be on your toes worried if your child is seizing even a loved one. It makes you more knowledgeable and aware though too. How old is your son? Is this a new behavior? Think, is this his normal self waking up like this? There are so many types of seizures you never know. Just don't beat yourself up though. Try not to stress. Make notes record him when you are seeing him doing the things that worry you and present your concerns to a doctor. They can refer you to a neurologist. Some baby's shake. It's normal. Just random types of shakes. But if it looks intense and worryingly then don't hesitate to call 911 record everything time them. It's so hard for me to tell you for sure if he's seizing.

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

@scottiesmommy yes please:)

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

There's nothing specific I can think of that would cause seizures. My sister is epileptic because she had a traumatic birth that caused her to have cerebral palsy, so it's not genetic that I know of. He recently started beating his head on things as a form of throwing a tantrum, which frustrates me because he does its REALLY hard and I'm worried he's going to like cause brain damage or something! But the shaking has been going on long before his head beating, so I think/hope they're unrelated.

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

@blessedmama09

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

He's definitely aware while it's happening, which is part of what makes me second guess my worries, but I've witnessed my sister have seizures where she was still aware as well. He kind of cries while it's happening, and looks around as if he doesn't know where he is (which makes me question whether or not it's just simply that he wakes up wierder than other ppl). The part that freaks me out, though, is the shaking. It kind of almost looks like intense shivering, except without the usual jaw shuddering that comes with shivering from the cold. It usually takes me about a minute of petting and talking gently to get him to calm down, and usually he's fine afterwards (as long as his nap was good enough). He doesn't seem taxed afterwards like my sister does after her seizures. I guess I'm just kind of paranoid because seeing my sister seize really traumatized me, and so far I haven't met anyone who has experience with their kid waking up from naps like my son does, so the only thing I have to compare his symptoms to is my sister seizures.

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@dashtikalin, is there anything that's happened to him to make him have seizures or is it just family history that has you considered?

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

@dashtikalin, when he does the shaking push your hand down on him. If the shaking doesn't stop it's still strong even though you're pushing down on him it's possible it could be a seizure. The only way to know for sure to to have him hooked up to an EEG. When he does it record him. Try to get the recordings to his doctor for back up and express your concerns. Does he go back to sleep after he does it? How do his eyes look? Are they shaking twitching or stuck looking in a certain direction? Remember everything and write it down if you must. How long does these episodes usually last? Is he aware when he is doing it? Can you snap him out of it?

02.11.2017 Нравится Ответить
dashtikalin
Tara18·Мама двоих (8 лет, 9 лет)

@blessedmama09 I was wondering how the epilepsy presented in the beginning? My son does this thing when he wakes up from sleeping where he shakes and looks concerned. It reminds me of some small seizures my epileptic sister has had. His movements are not quite as severe as hers, though, so I keep questioning whether or not I'm just overreacting.

02.11.2017 Нравится Ответить
blessedmamabear
Blessed Mama Bear·Многодетная мама (5 детей)

I do. Ask away!

02.11.2017 Нравится Ответить