#mombassadorchat Moms, Our chat today is with @smilingwithmyawesome4kids on the topic of Epilepsy.
#mombassadorchat
Moms,
Our chat today is with @smilingwithmyawesome4kids on the topic of Epilepsy.
Here's her bio:
Hello 👋 I am Ceiamaria, I am happily married to my amazing, awesome, caring, supportive, & loving husband of 12 almost 13 wonderful years . We have four beautiful children: Kristen is 12 she is our only princess. 👸🏼 Ty Ty is 9 years old, he is in the picture above. He was diagnosed with epilepsy at 2 1/2 years old. He has 35 different kinds of seizures and sees a neurologist every month. His seizures are unpredictable and he is on 10 different kinds of medications. His medications sometimes control his seizures and sometimes they do absolutely nothing. Ty Ty has blood on the back of his brain. He is a part of the Epilepsy Foundation. We pray that one day there is a cure for Epilepsy. Dan Dan is our second son he is 8 years old. Baby Mac is our third son. Ty Ty's seizures are very severe.
Here are some tips to learn more about Seizures and Epilepsy:
1.) Epilepsy starts out with clonic seizures
2.) Frebile is a fever 🤒 seizure but the neurologists don’t count these as seizures.
3.) If you believe your child had a seizure please take them to the Emergency 🚨 room to get checked out
4.) Only a neurologist can determine if your child had a seizure or not
5.) if a neurologist determined your child needs medications, please give the medicine
4.) Keep a seizure journal. take your seizure journal to your child’s neurologist and they will review the journal
5.) Brain ct scans sometimes can determine if you will have Epilepsy.
6.) Get a life alert bracelet to let others know you have seizures or that you have epilepsy
7.) Remember your child can not do certain things example my son can’t climb high up because he has epilepsy
8.) Discuss everything with your child’s neurologist
9.) Once your child reaches driving age they have to be cleared by their neurologist to be able to obtain their drivers license, some states require you be seizure free for so long before they will allow you to obtain your drivers license
10.) Don’t lie on the applications when they ask if you have seizures because you can get in a lot of trouble
11.) Remember seizures or Epilepsy don't define you. It’s just a obstacle. You can still play sports, but let your Coach know
12.) Seizures or epilepsy is not contagious at all. I remember when Ty Ty told his teacher he had epilepsy and all the children thought it was a disease
13.) As soon as your child’s neurologist diagnoses your child with seizures or epilepsy file for SSI, a lot of medications are not covered on most insurance
14.) Don’t treat your child differently, just embrace their seizures or epilepsy. Often Ty Ty's eyes would hurt 😞 due to the lights so we would play or tell a story in the dark . We never let Ty Ty feel left out.
We are praying for the day that a cure is found for seizures and for epilepsy
Tag @smilingwithmyawesome4kids in the comments to ask her a question!
A huge thanks to her for hosting the chat 💗
Let's get chatting!
🍂mom.life_usa🍁
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@babyofmine, I absolutely apologize I just seen this my advice would ask your neurologist if they approve you to drive sometimes they approve strict day time driving no night time driving but check with your neurologist first then call up your local Bmv office ask what their guidelines are if you have any question please message me ❤️
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