Has anyone else ever felt they are going backwards. We are now having extra oxygen because his saturation's dropped. I…

Thanks goodness for that fingers crossed he will be fine now lv xx@sarahthe

@becky1111 he made it through the operation he is doing ok hopefully be able to give him a normal feed if he stays stable with the speech and language so they can also see if he has a good swallow. The 02 is off and his saturations are 96 so hopefully fingers crossed they stay that way x

Hope your little man is ok how did the operation go xx@sarahthe

He won't die hun!!! It just seems very hard right now. It will get easier x

@sarahthe yes please keep us updated.

X

@laurabump27 yes i dont know if it me or just a normal thing but the nurses are saying relax how can i relax when my little boy might die. Thanks ill let you know x

In his larynx!?

No youve consented for him to have the best chance of survival!!!

Hold in ther mummy... these times will be a distant memory stay strong.. sending positive thoughts for you and your little boy x

@laurabump27 he has a tiny hole in his lung where it was working to hard and popped and he has a split in his feeding pipe. So if he makes it through the operation he is just so tiny. I just hope i havent consented for my son to die.

@sarahthe oh ok... keep strong mummy.. he will be ok! X

@laurabump27 hi sorry there just preparing him for emergency theatre. His sats are 86% on 02

@sarahthe swallow could defo be laryngomalacia or just say floppy larynx! X

@notalja it doesnt matter they think he might not be able to swallow

@laurabump27 ok i will do thanks x

@sarahthe salt are very very good!!

Mention a condition called laryngomalacia... that can cause blue spells during feeds and also aspiration x

@sarahthe So pity to hear that ,If you need advice let me know then , Im not English but will try all my best.They need to find out why your baby refusing bottle milk , Sorry for question but there no anymore chance for you to breastfeed your baby ?

@laurabump27 speech and language will assess his swallow but its horrible he went all blue in the middle of a feed i had to pull the emergency bell lucky we were already in hospital because he dropped weight.

Above

@sarahthe ah ok... he will be ok hun. Babies are very strong and his o2 is pretty perfect anything about 96 is good

@laurabump27 they just want to stablise him first before doing tests

@sarahthe ah thats good!!!

Have they said what they think is wrong? X

@laurabump27 He was now its better just i feel like i forced him to drink his milk but since they did suction he has picked up sats wise they were 88% now 99% on o2 still at the moment.

Have they looked for a swallow issue!!?

Xx

@sarahthe is he a noisy breather? Xx

@laurabump27 they think he may have aspirated on his milk.

Why did his sats drop xx

@beffgoude thanks i just wish there was more i could do to help him.

@sarahthe don't ever put yourself down, things happen that are out of our control. The main thing is your doing your best to help him. Your a great mum, don't ever think otherwise lovely ♥

@chesscalouise2 I'll keep you all updated. I just feel like a failure of a mother at the moment. I just sit there at night starring at his little incubator.

@beffgoude he was only 5lb 1oz born. But he then dropped alot of weight.

@sarahthe let us no how he is thinking of you guys xx

@sarahthe oh that's super tiny, what was he when he was born? hopefully everything goes great for you all. xx

@beffgoude hoping that it goes ok tonight as there trialing without the oxygen so just the feeding tube. He only weighs 4lb 5oz now.

I hope everything gets better for you soon, so you can get back to some normality. Bless him he's so tiny ♥🙏

@chesscalouise2 thanks he was fine just refusing bottles now he's on lots of machines keeping him alive.

God bless him am sure things will start looking up for you guys soon am here if you need a chat xx @sarahthe

Aww bless him x