Has anyone else ever felt they are going backwards. We are now having extra oxygen because his…

Aww bless him x

God bless him am sure things will start looking up for you guys soon am here if you need a chat xx @sarahthe

@chesscalouise2 thanks he was fine just refusing bottles now he's on lots of machines keeping him alive.

I hope everything gets better for you soon, so you can get back to some normality. Bless him he's so tiny ♥🙏

@beffgoude hoping that it goes ok tonight as there trialing without the oxygen so just the feeding tube. He only weighs 4lb 5oz now.

@sarahthe oh that's super tiny, what was he when he was born? hopefully everything goes great for you all. xx

@sarahthe let us no how he is thinking of you guys xx

@beffgoude he was only 5lb 1oz born. But he then dropped alot of weight.

@chesscalouise2 I'll keep you all updated. I just feel like a failure of a mother at the moment. I just sit there at night starring at his little incubator.

@sarahthe don't ever put yourself down, things happen that are out of our control. The main thing is your doing your best to help him. Your a great mum, don't ever think otherwise lovely ♥

@beffgoude thanks i just wish there was more i could do to help him.

Why did his sats drop xx

@laurabump27 they think he may have aspirated on his milk.

@sarahthe is he a noisy breather? Xx

Have they looked for a swallow issue!!?

Xx

@laurabump27 He was now its better just i feel like i forced him to drink his milk but since they did suction he has picked up sats wise they were 88% now 99% on o2 still at the moment.

@sarahthe ah thats good!!!

Have they said what they think is wrong? X

@laurabump27 they just want to stablise him first before doing tests

@sarahthe ah ok... he will be ok hun. Babies are very strong and his o2 is pretty perfect anything about 96 is good

Above

@laurabump27 speech and language will assess his swallow but its horrible he went all blue in the middle of a feed i had to pull the emergency bell lucky we were already in hospital because he dropped weight.

@sarahthe So pity to hear that ,If you need advice let me know then , Im not English but will try all my best.They need to find out why your baby refusing bottle milk , Sorry for question but there no anymore chance for you to breastfeed your baby ?

@sarahthe salt are very very good!!

Mention a condition called laryngomalacia... that can cause blue spells during feeds and also aspiration x

@laurabump27 ok i will do thanks x

@notalja it doesnt matter they think he might not be able to swallow

@sarahthe swallow could defo be laryngomalacia or just say floppy larynx! X

@laurabump27 hi sorry there just preparing him for emergency theatre. His sats are 86% on 02

@sarahthe oh ok... keep strong mummy.. he will be ok! X

@laurabump27 he has a tiny hole in his lung where it was working to hard and popped and he has a split in his feeding pipe. So if he makes it through the operation he is just so tiny. I just hope i havent consented for my son to die.

In his larynx!?

No youve consented for him to have the best chance of survival!!!

Hold in ther mummy... these times will be a distant memory stay strong.. sending positive thoughts for you and your little boy x

@laurabump27 yes i dont know if it me or just a normal thing but the nurses are saying relax how can i relax when my little boy might die. Thanks ill let you know x

@sarahthe yes please keep us updated.

X

He won't die hun!!! It just seems very hard right now. It will get easier x

Hope your little man is ok how did the operation go xx@sarahthe

@becky1111 he made it through the operation he is doing ok hopefully be able to give him a normal feed if he stays stable with the speech and language so they can also see if he has a good swallow. The 02 is off and his saturations are 96 so hopefully fingers crossed they stay that way x

Thanks goodness for that fingers crossed he will be fine now lv xx@sarahthe