I've had a few momma's ask for an update on my Daughter So I got a call from Hadley's genetic…

I've had a few momma's ask for an update on my Daughter So I got a call from Hadley's genetic counselor with her test results. She has to rare gene deformities she has CPA6 which is so rare they don't know a whole lot about it just that it causes focal and febrile seizures and frontal lobe epilepsy. She also has KCNH2 which is linked to seizures and heart deformities and heart failure. She has to have an ekg and be on seizure meds and will have to see a cardiologist for the rest of her life she has been diagnosed epileptic. The genetic counselor is brining her case to a genetic conference on Wednesday to have a little bit more info I'll let you know what they say we decided not to test kohen until and or if he has seizures in the future