Kylee
silly.goose
Kylee·Мама двоих (9 лет, 14 лет)
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Anyone with kids that have PKU or wanna learn more about this rare disease go like my page on my daughters lifelong journey with phenylketonuria ❤️

22.09.2016
4

Комментарии

silly.goose
Kylee·Мама двоих (9 лет, 14 лет)

Thank you so much! ❤️ @emkasting

01.10.2016 Нравится Ответить
emtackett
emily·Мама сына (9 лет)

Oh wow I've never heard of that. But being a vegan while it'll make grocery shopping a bit more complex certainly isn't the end of the world. Your daughter is beautiful :)

24.09.2016 Нравится Ответить
silly.goose
Kylee·Мама двоих (9 лет, 14 лет)

@emkasting, sorry my response is so late

24.09.2016 Нравится Ответить
silly.goose
Kylee·Мама двоих (9 лет, 14 лет)

It's a rare metabolic disorder where my daughter had to have very very little amounts of protein in her diet cause she can't process an amino acid called phenylalanine and so if she wasn't on a special diet it would cause severe metal retardation (sorry about that word, I hate using it but it's how her doctors describe it) she pretty much has to be a vegan her whole life

24.09.2016 Нравится Ответить
emtackett
emily·Мама сына (9 лет)

I've never heard of that, what is it if you don't mind me asking?

22.09.2016 Нравится Ответить
puertoricanprincess1
🍒🇵🇷PuertoRican Princess 🇵🇷🍒·Мама сына (10 лет)

awww shes beautiful ill support pku for your little gurl my prayers are with you and your family god bless nice to meet you

22.09.2016 Нравится Ответить