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Jess
Jess
Мама двоих (младенец), ждёт третьего

Hey y'all. I'm 11 weeks & 2 days. I found out on Monday that I have Sjorgen's syndrome.... which can cause neonatal…

Hey y'all. I'm 11 weeks & 2 days. I found out on Monday that I have Sjorgen's syndrome.... which can cause neonatal Lupus. I'm terrified. I go in for my first trimester screen & genetic testing next week. I'm hoping that this LO is healthy, but it's hard not to be a worried mess! 😭

I was wondering if anyone has Sjorgen's syndrome while pregnant & has any information or success stories to share. TIA!

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mamabug

Lakeisha

Мама дочки (6 лет), беременна (33 нед.)

I don't have any personal experience but one of my old friends had it and developed lupus with all three of her pregnancies. She has three healthy children. I think she had to administer shots during her pregnancies. I'll message her on Facebook and see what she says.

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mamabug

Lakeisha

Мама дочки (6 лет), беременна (33 нед.)

She never received the same diagnosis as you, but she did have lupus that only showed up during pregnancy. She is now being told she has Reynaud's. She said with her first two babies, she had to take two shots of heparin a day, but other than that, everything was manageable. With her last, she took one shot of lovenox a day. All three kids were born healthy without any complications. I'm sure it's nerve-wrecking to be told you have any condition during pregnancy, but I pray that everything works out for you!

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jesslee603

Jess

Мама двоих (младенец), ждёт третьего

Thank you so much for your reply & info. I appreciate it! & thanks for the well wishes. 😃

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So, a few days ago I did genetic testing to see if my baby would have any disabilities. The numbers came back higher for…

So, a few days ago I did genetic testing to see if my baby would have any disabilities. The numbers came back higher for Down syndrome and I now have to speak to a counselor about my options as far as continuing this pregnancy. The midwife said it isn't a final diagnosis, and it still makes me wonder. I'm not sure exactly how to take this, I'm thinking of getting a second opinion. Has this happen to anyone you know, or has anyone experienced this before and received a good outcome? I don't want to terminate my pregnancy and then chances are I could have had a healthy baby. All my sonograms are amazingly fine, the baby is always described as perfect as no one in mine/ or my child's father family has ever been diagnosed with Down Syndrome and it's supposed to be passed through genetic. I need advice 😕