Hey y'all. I'm 11 weeks & 2 days. I found out on Monday that I have Sjorgen's syndrome.... which can cause neonatal Lupus. I'm terrified. I go in for my first trimester screen & genetic testing next week. I'm hoping that this LO is healthy, but it's hard not to be a worried mess! 😭
I was wondering if anyone has Sjorgen's syndrome while pregnant & has any information or success stories to share. TIA!
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She never received the same diagnosis as you, but she did have lupus that only showed up during pregnancy. She is now being told she has Reynaud's. She said with her first two babies, she had to take two shots of heparin a day, but other than that, everything was manageable. With her last, she took one shot of lovenox a day. All three kids were born healthy without any complications. I'm sure it's nerve-wrecking to be told you have any condition during pregnancy, but I pray that everything works out for you!
I don't have any personal experience but one of my old friends had it and developed lupus with all three of her pregnancies. She has three healthy children. I think she had to administer shots during her pregnancies. I'll message her on Facebook and see what she says.
Thank you so much for your reply & info. I appreciate it! & thanks for the well wishes. 😃