My MIL's friend and colleague so looked forward to the birth of her first child, her son Kenny. He…
My MIL's friend and colleague so looked forward to the birth of her first child, her son Kenny. He is 5 months old. They just found out that he has a very rare disease called FOP or stone man syndrome. There are only 800 known cases worldwide with no cure. Muscles and ligaments turn to bone with even the slightest injury. Please prary for this beautiful boy and his family!
Dounia Gregorio·
Мама сына-младенца
♡poor baby
Domenique·
Мама двоих (1 год, 6 лет), ждёт третьего
I'm sorry to hear this
i know hes young and this may be a far reaching option but tell her to resear h in this direction
http://www.iflscience.com/health-and-medicine/possible-cure-found-rare-stone-man-disease-turns-muscl
Elle·
Мама сына-младенца
Wow thank you I will definitely pass it along! @domijac3
lil_bigmama·
Мама сына (3 года), беременна (27 нед.)
I hate that for them well b praying
Domenique·
Мама двоих (1 год, 6 лет), ждёт третьего
you're welcome its something to find a specislist to research and look into ya kno?
Domenique·
Мама двоих (1 год, 6 лет), ждёт третьего
she can gogle International FOP Association