30% chance of pretty long life is what I meant to put

Aww :( & yea with the disease she had they said with treatment she'd have like a 0 chance of living a pretty long life, but with no treatments she would live to about 9 years old but that would be it. They chose to do treatment. & I know what you mean Hun, I was standing there when they took her off life support. Her dad was holding her & at this point the only thing she could move was her fingers. When they unplugged her you could see her little fingers just close real slow & we knew what that meant. That moment was the worst moment of my life. Seeing her little fingers close like that. 😢

@momma312, omg she was so young having to go thru that my heart is with you and your family. I still remember what the last thing he said to me "help me nene" he asked the doctor for me. that replays in my head everyday and thank you

😢 it really is. It literally breaks your heart & you never stop asking why. It's been years now (2008) but I've never forgotten how beautiful she was. I miss her so much but she isn't suffering no more. She had to go threw chemotherapy treatments & radiation & all kinds of things. Bone marrow transplants. Even after all that she tried to play & everything...Whew lol it still stays in my mind & it hurts but I am glad she doesn't have to go through those things anymore. I hope your pain eases Hun. & if you need to talk I'm here 🙂💝

@momma312 He did to his nicknames are monkey and monster he was always happy and he touched everyone's heart when they meet him. I'm so sorry for your lost to. Its so said when someone so young passes away. He passed away 3 days after my sister's birthday (his actually mom). He use to call me mommy nene

Aww Hun I'm so sorry for your loss! I had a cousin who I was close to. She was just a baby when they found out she had hurlers syndrome :( she passed not long after her first birthday. She stayed happy until the end.