Sitting here trying to organize myself for Alauras eeg Tuesday and ready to cry.. in her short 7…
Sitting here trying to organize myself for Alauras eeg Tuesday and ready to cry.. in her short 7 months she's had multiple ivs, a cath for several tests, multiple xrays, a swallow study, barium swallow, ph test, the threat of tube feed more than once, 9 damn formulas, eeg, mri, been sedated, regular blood work that will continue until she's 2.. regular eegs until she's 2, fixing to have a sleep study, several medicines and 2 therapists, several hospital stays, 2 fixing to be 3 specialists, and a special needs case worker and whatever else I've probably just blocked away... and she still smiles, every single day.. she has so much love, even through all this.. I swear she's stronger than I am, I just wish I could take it all away.. I need to go to sleep😭
missing41user·
Мама троих детей
My son has a severe case of dermatitis and has had more doctors, specialists, medications, procedures, and the like than any child should have to endure. I have spent many nights crying myself to sleep and asking God why. Begging God to take it away. But instead of changing the illness, He changed me. I've learned so much from my son. He smiles even though he's in pain and literally cannot stop itching. He gets up everyday and faces school where kids are cruel and merciless when you look different than them. But God showed me that this wasn't my battle to fight off. But a journey to ride through with my baby boy. To be his strength when he gets weak, to be his inspiration when he wants to quit, to be a voice to others going through similar things, and countless other lessons. It's so incredibly hard to see your innocent child suffer and to not be able to fix it. But you are strong enough to be her mother and God chose you specifically for this task because you have what it takes to give her the best. Keep fighting for your princess and never give up( I already know you never would). God bless you and rest. You deserve it.
missing69user·
Мама двоих (младенец)
@queeneden, You know first hand how hard it can be, I've had many days where nap time was me crying in another room so she doesn't see, even if it's just 5 minutes.Our babies are a special blessing that is for sure, I am so proud to be her mommy and so amazed by her. It really does change how you look at life! It's made myself and fiance stronger and better people in ways we could never imagine, I'm so saddened by your son! There is no pain like seeing your child in pain and knowing you can't fix it. I'm just so glad we have such amazing doctors and therapists and such by our side!