Big update on my Izzaboo!
She will be starting a new medication in the next few days that's looking very promising. She's only the 8th person to receive it (in the US at least from what we know) and she is the youngest by far. They've had amazing luck with the 7 other patients and due to how young she is they will be monitoring her extremely closely. We will now be making a trip to Seattle once a month for an indefinite amount of time to get her checked. Pray for our little one that this will work well for her! 👍💜😃