Pantogam for cerebral palsy: experience with a 6-year-old child?

Hello everyone,

I am writing from Türkiye. I have a 6-year-old child who has been diagnosed with cerebral palsy.

My child’s mobility is severely limited. They cannot walk, have no trunk control, cannot sit without support, and are unable to speak. They only make sounds in their own way, but they are not meaningful words. They are trying very hard to communicate.

A medication called Pantogam (Pantotin) is not available in my country. However, I know a few families who have used it, and they suggested that I should consider it for my child. Most doctors in Türkiye are not familiar with this medication or consider it to be just a vitamin or dietary supplement. However, when I researched it, I found that it is a prescription medication in several countries.

I would really appreciate hearing from parents or caregivers who have experience with Pantogam.

* Did you notice any improvements after your child started taking Pantogam?

* Did it help with speech, attention, learning, movement, or muscle control?

* Did your child experience any side effects?

* If you were in my situation, would you recommend trying this medication?

My child is currently receiving regular physical therapy and speech therapy. I would like to know whether Pantogam could provide any additional benefit alongside these therapies.

Thank you very much to everyone who is willing to share their experience. #myfirstpost