Hi Ashley, we do not have this experience but my baby was born with congenital hypothyroid, and I was so worried. I googled every single time and that made me even more frustrated. There are a lot of wrong information in the internet. We found a right doctor and my baby is recovered, she is not on medication anymore. So, please look for a right doctor and do not read from internet. Babies are strong, and I believe your baby will make it too. Good luck !