Today is my birthday . I want share something that’s been hurting my heart.
Today is my birthday . I want share something that’s been hurting my heart.
My brother passed away a month after birth with a classic case of cystic fibrosis. Which made me shake at the sign I was expecting all four times I was so scared my babies could have it .. because I’m a carrier
Two weeks after my baby was born we received a phone call that shattered my world .. my baby too had failed her newborn screening and has been diagnosed with cf .. I don’t think I ever cried so hard in my life
The good news is that she’s not showing any signs of the cf .. I was told to protect her from getting sick and She will have to be checked every six months .. it’s my fault she has this and my husband told me we won’t have any more kids till we know more about her cf .. that makes makes my heart break because I want another
Lulu·
Happy Birthday!
I’m sorry to hear about your brother. How old was he? How was your daughter diagnosed? Blood tests? I’m so sorry.
Caterina ·
Мама четверых детей
@lulu85_18, yes with a newborn screening only New York and California are now looking in to more genetic testing if they didn’t have this in New York we would have never known