Doctor just called and they're still on the opinion that she may not live long only because she has…
Doctor just called and they're still on the opinion that she may not live long only because she has a lot of dips in her oxygen. She said it's not something she can really give a time frame for because some live longer than expected and some don't. She was talking about her seizures and saying that though they're being controlled there's a chance that they could get worse and do more harm on her body. So she's getting in touch with the essential care so that we can start making a plan to get her home and make her comfortable. So there's a chance that she could be coming home in a few days.
Holoprosencephaly
Kinsey has one front tooth and Dana's son from a previous relationship has a cleft and other issues as well, plus a few other things that are on his side of the family. The geneticist diagnosed her with this just by looking at her and would like to further examine Dana and Kinsey.
Endocrinologist will be taking a look at her as well.
Her episodes are happening more often, where it seems like she is struggling to breathe and her heart rate is sky-high. O2 is still at 25, vitals are good. So the only thing that didn't develop properly is her brain.
deleted-user·
Oh my goodness, bless her little heart
Elizabeth·
Prayers ❤️ what a beautiful little girl you have.
Steph·
My prayers are going out to your baby girl and your family!!! 🙏🙏🙏I pray she gets to go home!
_Sheriee·
Мама двоих (младенец)
Prayers your way mama
deleted-user·
Prayers!
Chela·
Prayers
DaMirsMommy·
Prayers Momma 😩 Sorry To Hear That About Your Baby I Currently Have A Brother Who Deals With Epilepsy So Ik How You Feel
Sha·
I'm so sorry to hear about your baby girl. This is so heartbreaking. I pray that you guys are able to take her home with you and make her comfortable. 🙏🏽
3Divas&2Kings·
Sorry about your baby girl. I hope she gets to go home soon. Prayers