I am so ready for the doctors to be able to start waking Leo up! This whole surgery has been a…

I am so ready for the doctors to be able to start waking Leo up! This whole surgery has been a nightmare and I’m super worried about how he will come out of this! I can’t post any of this on FB because we’re trying to shield our family from the bad details, but I am just beside myself with worry! After surgery Leo was running a persistent fever, which at one point got up to 103, his HR was too high and his work of breathing (even on a ventilator) wasn’t decent. It was determined that he has pneumonia.... not good for a kiddo who is on paralytics and sedation, those secretions just settle. For a kid with already bad lungs, this is a pretty huge and dangerous hit! In addition to this, his heart started acting up. We finally got his fever down and him on a course of antibiotics just in time for him to drop his temp super LOW...He is super swollen, almost unrecognizable, and his heart has been going from low 90s straight to 160s in a matter of a few min. Right now we need to make it through until Monday when we can begin to lift the sedation and paralytics. My mommy heart just breaks thinking about it, I worry about his brain and heart functions when we come out of all of this... I worry that his lungs could have taken that one bad hit that we can’t manage.... I worry that he will need the ventilator longer than we thought and I worry that he just won’t be “the same”. We know that with all that has gone on since surgery we will be in ICU for longer than expected. Please pray that once we start lifting sedation we see a quick improvement. Leo is so strong, he fights so hard for every day, I just want to get back to “normal”... our normal.... I just want al my family back under one roof!