Think in the wee hours of the morning we had our first Sickle Cell Crisis. Stayed out a little too…

Think in the wee hours of the morning we had our first Sickle Cell Crisis. Stayed out a little too long at DisneyLand and it got a little too cold for Gia. Its not going to be easy finding balance with trying not to neglect my 13 year old while also being mindful of the restriction of having a child with a chronis disease. Thankfully it was not severe enough to require any pain medication just iv fluids #PrayForGia #FinaACure #ILoveSomeOneWithSickleCell